A couple months have passed, and a few hospital visits, since our last report.
First off we both want to say Thank You to each of you for your support. It is truly appreciated. It has been a long road.
Over the past couple months things have finally settled down. The what/who/when/where are all finally coming to a close.
For a lady who was told she would not make it through December the news is currently all good.
The CAR-T cell procedure is out. We will not be going to Duke. (They are not yet approved and may be some time yet)
The doctors continue to be mystified and now, after over 40 pints of blood, and well over that many platelets, her own numbers are now continuing to improve and the need for blood/platelets are getting father and farther apart. As much as over two weeks apart now. She has had a couple more "short" stays in the hospital, to start back on the drugs after being off for a while, but things have went well. All the nurses call it "the reunion".
The decision, as it stands now, is to receive a bone marrow transplant in Greenville S.C. at St. Francis Hospital system who does these transplants regularly. It also means we will be close to home as its only about 35 miles each way for the many trips for follow up visits.
Victoria's sister, daughter and son are being tested now for a match. If no match she will receive it from the bone marrow bank.
She currently has only three more weeks, out of the 28, on the new drug. This completes the "treatment" but if no bone marrow match is available when needed, she will continue on the cycle of 4 weeks on drug, then 2 weeks off until the transplant is totally in place. Our understanding is that she can continue this cycle for a few months if needed. We hope not!!
We are cautious of the 4 days of mega hits of Chemo that she must receive prior to the transplant. We know what the stuff did a year ago but hopefully not this time. She is in good spirits, still bossing me around and enjoys some company now that the flu situation is getting better....but be prepared to wear a mask for now though!!
Hey, I even got to spend some time in the shop for a day or two including working on my coupe Saturday. It felt good.
We cannot say Thank You enough for all the thoughts prayers and the donations of blood that we have received from our friends, Stovebolters. church members and even total strangers. THANK YOU and may God bless you for your good works.